Symptoms

Long Covid puts an extra burden on family caregivers

Family caregivers of people with long COVID bear an extra burden

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With unpredictable symptoms that can wax and wane mysteriously, long COVID also requires exceptionally good record-keeping, in order to provide doctors with new clues. But because the disease often causes fatigue and brain fog, some patients can't keep track for themselves. They rely on friends or family for help.

"The family caregiver becomes the care manager, advocating and managing the system," the late John Schall, former CEO of the Caregiver Action Network, an education and advocacy nonprofit, told us last year. "And you're doing it by guesswork. Nobody tells you what to look for."

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Black Americans suffering from long COVID say they have trouble accessing care

I felt powerless': Black Americans suffering from long COVID say they have trouble accessing care

Throughout the pandemic, Black Americans have made up a disproportionate share of cases, hospitalizations and deaths compared to any other racial or ethnic group.

Now, doctors and advocates are warning the Black community is facing another barrier: access to long COVID care.

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Updated: Guidance on how long people should quarantine with newest COVID variant XBB1.5

...People with COVID-19 should isolate for five days, the CDC said. And, if they are asymptomatic or their symptoms are resolving (without fever for 24 hours), they should follow that by five days of wearing a mask when around others to minimize the risk of infecting people they encounter.

The change is motivated by science demonstrating that the majority of COVID transmission occurs early in the course of illness — generally in the one to two days prior to onset of symptoms, and then two to three days after, according to CDC guidance.

Additionally, the CDC also recently updated the recommended quarantine period for anyone who knows they were exposed to COVID-19.

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Opinion: The COVID-19 Pandemic Will Be Over When Americans Think It Is

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"Here’s my proposed definition: the country will not fully emerge from the COVID-19 pandemic until most people in our diverse nation accept the risk and consequences of exposure to a ubiquitous SARS-CoV-2, the virus that causes COVID-19."

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